Elections 2021: ‘Parents should not must combat for kid’s care’

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The mom of a disabled boy has mentioned she believes he’s being failed by the social care system.

Zach, 10, from Mansfield, has a number of life-limiting situations, together with studying disabilities, sensory processing dysfunction and intestinal failure.

He additionally has a central line – a tube related to a big vein near his coronary heart – which offers him with very important fluids and medicine.

Despite having steady care wants, Zach faces a wait of as much as a 12 months for important new tools, in line with his mum Tricy.

“His bed isn’t suitable. He’s damaged his central line three times,” she mentioned.

Together For Shorter Lives, a charity which helps critically sick kids and their households, mentioned it has seen a rise within the variety of calls from mother and father who’re struggling to entry persevering with well being care, whereas kids’s providers in England have been described as being “woefully underfunded” by the Association of Directors of Children’s Services.

Laurence Jones, service director, commissioning and sources in kids and household providers at Nottinghamshire County Council, mentioned the authority was “sympathetic” in the direction of Zach’s scenario.

“We strive to ensure that children and young people receive the support they need. We are providing ongoing social care support for which the county council is responsible and regularly assess to ensure this is reviewed as the child’s needs change,” he added.

A spokesperson for NHS Nottingham and Nottinghamshire Clinical Commissioning Group (CCG) mentioned: “We cannot comment on a patient’s individual case. However, the CCG always works in partnership with colleagues across the system in education and social care to ensure that the needs of children with complex conditions are met.”

On 6 May across England millions of people will be voting for new councillors, mayors and police and crime commissioners. Register to vote right here.

Video journalist: Alex Thorp

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